Research Publications
Publications related to our creative work
2025 Stem Cell Reports Transparency and ongoing communication with participants in brain organoid research: Consensus of an interdisciplinary working group
2025 Journal of Medical Internet Research Perspectives of Hispanic and Latinx Community Members on AI-Enabled mHealth Tools: Qualitative Focus Group Study
2024 Genetics in Medicine Open Using visual storytelling to share aggregate findings with families participating in clinical genomics research
2023 Patient Education and Counseling Family-Reflections.com: Creating a parent-to-parent web-based tool regarding pediatric home ventilation
2022 Personalized Medicine Development and evaluation of an exome sequencing training course for medical interpreters
2022 Journal of the American College of Emergency Physicians Open Managing acute pain in children presenting to the emergency department without opioids
2022 Journal of Asthma Evaluation of the effect of an education program using cartoons and comics on disease management in children with asthma: a randomized controlled study
2022 Journal of Comparative Effectiveness Research Streamlined versus traditional consent for low-risk comparative effectiveness trials: a randomized experimental study to measure patients’ and public attitudes
2021 Paediatrics & Child Health An assessment of the psychometric properties of the Stoplight Pain Scale in a Canadian paediatric emergency department
2021 Clinical Medicine Research Implementation of a Pictorial Asthma Action Plan (PAAP) in a Special Population
2021 Journal of Allergy and Clinical Immunology School-Based Asthma Education Intervention is Associated with Improved Asthma Knowledge in Spanish bi-lingual children with asthma
2021 Academic Pediatrics Leveraging the Electronic Medical Record to Increase Distribution of Low Literacy Asthma Education in the Emergency Department
2020 AJOB Empirical Bioethics Participant Reactions to a Literacy-Focused, Web-Based Informed Consent Approach for a Genomic Implementation Study
2020 Contemporary Clinical Trials Team clinic: Expansion of a multidisciplinary care model for adolescents with type 1 diabetes
2020 Journal of Health Care for the Poor and Underserved Discordant Patient and Clinician Perspectives on the Potential Value of Genetic Services in Safety-Net Clinics
2019 Genetics in Medicine I don't want to be Henrietta Lacks: diverse patient perspectives on donating biospecimens for precision medicine research
2018 AMA Journal of Ethics Are Comic Books Appropriate Health Education Formats to Offer Adult Patients?
2018 The American Journal of Bioethics Beyond Consent: Building Trusting Relationships With Diverse Populations in Precision Medicine Research
2017 Health Communication The Feasibility of Utilizing a Comic for Education in the Emergency Department Setting
2017 Clinical Trials A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent
2016 Clinical Trials A comparison of institutional review board professionals’ and patients’ views on consent for research on medical practices
2016 The Journal of School Nursing Evaluation of a School-Based Asthma Education Protocol: Iggy and the Inhalers
2015 Annals of Internal Medicine Attitudes Toward Risk and Informed Consent for Research on Medical Practices