Consent Videos
Explaining informed consent document information
Project Background
The NIH supports a longitudinal cohort study of children who were born with HIV. Once the children turn 18, they are asked to consent to related studies that follow them during young adulthood. The leadership of this research project asked us to help them explain key concepts of the informed consent document to the research participants.
Our Work
We produced a set of videos that explain sample collection, confidentiality, and other consent topics. We created characters to reflect the diversity of the study population. Each video also reinforces the idea that the participants have the choice to decline continued participation in the research.
Results
The videos are used in recruitment efforts for a study including 700 young adults who acquired HIV at birth and 250 who were exposed to HIV at birth.
